This walk was the first Tuberous Sclerosis Walkathon on a College Campus in the State of New Jersey. My name is Samantha Sinclair, 21 years old and I was born with Tuberous Sclerosis. I wanted to come up with a way to help others that are afflicted with the same medical condition that I have and also at the same time make others aware and understand what Tuberous Sclerosis is. Our first walk was November 20th, 2011. Now this is the 2nd Annual Tuberous Sclerosis Walkathon at Georgian Court University and we are walking to raise money and support individuals and families with Tuberous Sclerosis or whom know someone who has Tuberous Sclerosis. Tuberous Sclerosis Complex is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. It usually affects the central nervous system and results in a combination of symptoms including seizures, developmental delay, behavioral problems, skin abnormalities, and kidney disease.The money that is raised will be donated to hospitals, research facilities, and medical centers in hopes to find a cure to help individuals and their families for the future.
Anyone interested in coming you could register at the university on November 4th or register online at: https://secure.e2rm.com/registrant/LocationHome.aspx?EventID=82083&LangPref=en-CA&locationID=86605&R
Any Questions? Contact: Samantha Sinclair, Chair of TSC Lakewood, NJ Walkathon
Phone: (609) 410-0084